Blog Post

A place beyond tired

  • By Karen Emery
  • 15 Apr, 2018

Brain Fog

So as I sit writing today’s blog I recognise the irony. Today I shall be talking about the confusion and forgetfulness demonstrated by people with chronic fatigue brain fog. The irony and blue elephant in the room I’m just going to call out straight away to put it out there.

 I’m sat here as blonde female writing about confusion and forgetfulness. (no offence is intended to blonde women the world over, we know we’re smart it’s just others that think we are a bit dippy)

So back to brain fog

Brain fog is not a medically recognised term. But those of us that have had chronic fatigue know full well it exists.

It’s literally like having a fuzzy head, fog in the front of your skull filling the space. This affects concentration and makes it difficult to form or hold thoughts. It’s like being a goldfish with a 4 second memory. This is not occasionally this constantly and throughout every day. This isn’t the odd time you’ve forgotten where you parked your car at the supermarket, this is consistently not being able to function.

so if you’ve had chronic fatigue these will make you smile in recognition

·        Hands up if you walked into the kitchen and had absolutely no idea what you had gone there for.

·        Hands up if you found the plate in the bathroom, where you’d taken it for an unknown reason, put it down and then completely forgot about it.

·        Hands up who has post it note reminders around the house.

·        Hands up if you have alarm reminders on your phone.

·        Hands up if you now read things with post it notes all over it so you don’t forget something good you read.

·        Hands up if you have lost the power of speech  at times as you just can’t remember what the word for the thingy or doby flop is.

·        Hands up if you’ve put your address details in your bag as you're scared it could get so bad you’ll forget where you live.

It’s never a problem remembering social engagements, diary commitments, you don’t go out, you don’t do anything. You gave up going out a long time ago. You put a lot of your life on hold a long time ago #millionsmissing

Going back to my first blog you may have to cope with your brain fog while trying to hang onto functioning at work. Do you have an understanding boss?

It’s almost as your body runs out of energy it prioritises what it can afford to run and total concentration is just not one of them. Mental exertion at times can wear you out far more than anything physical you do. To put that into context that’s not doing the telegraph crossword, reading war and peace, that’s deciding what to have for breakfast.

Want to know more about chronic fatigue www.mesupport.co.uk, www.actionforme.org.uk 

#spoonies #millionsmissing

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